The mission of the Danny Did Organization is to create a reality in which healthcare providers proactively communicate with patients and caregivers about the risk of SUDEP and other forms of mortality associated with epilepsy. To elevate awareness of, and access to, technologies that enable early intervention and added safety when a seizure occurs.
While no device has been proven to prevent epilepsy-related mortality (including SUDEP), the Danny Did Foundation is devoted to seeking out seizure detection and seizure prediction devices - as well as other technologies - that are designed to enable intervention by a caregiver. Intervention is believed to reduce the risks that accompany epilepsy. They present these products for further review and investigation by anyone connected to seizure disorders.
One Service is a grant to assist individuals with purchasing some devices that can enable early detection of an epileptic episode.
GRANT APPLICATION: to access their application for device funding go to their website.
Download, complete and print the application. 2. Sign your application in pen. 3. Scan your application and email it as a PDF file to email@example.com. If you're not able to scan, mail it to their address listed on the website. Note, they can only assist with one resource per family. If there are any questions, contact the program at firstname.lastname@example.org.
The website lists many devices that assist individuals with epilepsy but not all are funded.